Amyloidosis Africa Members
OUR COMMITMENT
ACCESS WITHOUT BARRIERS
Amyloidosis Africa is committed to ensuring that awareness, education, and collaboration around amyloidosis are accessible across Africa, regardless of geography or resources. We prioritize affordability, equity, and sustainability so that healthcare professionals, patients, and researchers can participate meaningfully in improving amyloidosis diagnosis and care across the continent.
Access to credible education and collaboration has transformed how we recognize and manage amyloidosis. Amyloidosis Africa is creating opportunities that were previously unavailable in many African settings.
John Dawod
CRK CLINICAL RESEARCH KEY NGO
John Heshmat
CRK CLINICAL RESEARCH KEY NGO CHAIRMAN
Prof. Dr. Mzee Ngunga
KENYA CARDIAC SOCIETY PRESIDENT
Dr. Constantin Nyamuzangura
BURUNDI CARDIAC SOCIETY PRESIDENT
Dr. Anders Barasa
HEART FAILURE SPECIALIST
Dr. George Otieno
Cardiologist | Lecturer | KCS Board Member
Prof. Dr. Yasser Hosny
PROFESSOR OF CARDIOLOGY, EGYPT
Dr. Christine Mwachari
The Kenya Medical Research Institute (KEMRI)
Lydia Tadrous
EGYPTIAN DRUG AUTHORITY
Who Our Members Are
Our membership reflects the multidisciplinary nature of amyloidosis care and research. Members include:
Healthcare professionals, such as cardiologists, internists, neurologists, nephrologists, hematologists, radiologists, pathologists, and primary care providers
Researchers and academics involved in clinical, genetic, epidemiological, and health systems research
Patient advocates and caregivers with lived experience of amyloidosis
Professional societies and institutions committed to advancing cardiovascular and rare disease care
Partners and collaborators supporting education, research, and capacity building
Together, our members form a network dedicated to improving outcomes for patients across Africa.
Why Membership Matters
Amyloidosis remains underrecognized and underdiagnosed in many African countries. By bringing members together, Amyloidosis Africa creates a platform to:
Share knowledge and best practices
Strengthen early recognition and diagnosis
Support Africa-led research and data generation
Foster collaboration across countries and disciplines
Amplify African voices in global amyloidosis efforts
Membership helps transform isolated efforts into coordinated, continent-wide impact.
What Our Members Do
Members of Amyloidosis Africa contribute in many ways, including:
Participating in research projects and registries
Supporting awareness and education initiatives
Contributing to quality improvement programs
Engaging in advocacy and policy dialogue
Supporting patients and families through shared experience and guidance
Members are encouraged to participate according to their interests, expertise, and local context.
A Pan-African Community
Amyloidosis Africa is committed to building an inclusive network that reflects the diversity of African health systems, cultures, and experiences. We welcome members from all African countries and from the African diaspora, recognizing the importance of cross-regional and global collaboration. Our platform promotes equity, mutual respect, and shared leadership, ensuring that African perspectives guide priorities and actions.
Who Can Become a Member?
Membership is open to individuals and organizations who share our mission, including:
Healthcare professionals at any career stage
Researchers and students with an interest in amyloidosis
Patients, caregivers, and advocates
Institutions and professional bodies aligned with our goals
No prior experience with amyloidosis is required. A willingness to learn, collaborate, and contribute is what matters most.
Our Commitment to Members
Amyloidosis Africa is committed to supporting its members by providing:
Access to educational resources and learning opportunities
Visibility for African research and initiatives
Opportunities for collaboration and networking
A platform to share experiences, ideas, and best practices
We strive to ensure that membership is meaningful, inclusive, and impactful.
JOIN OUR MISSION
AFRICAN-LED IMPACT
Prof. Leonard Ngunga
Cardiac amyloidosis is no longer a rare disease, it’s a rarely diagnosed one. Through Amyloidosis Africa, we are reshaping how Africa detects and manages this hidden epidemic.
Prof. Yasser Hosny
We are building a continent-wide network of cardiologists committed to improving care for patients with amyloidosis. This collaboration is long overdue, and absolutely necessary.
Dr. Anders Barasa
For too long, patients across Africa have died undiagnosed. Amyloidosis Africa exists to change that through clinician education and regional collaboration.
Dr. George Otieno
Recognizing the red flags of amyloidosis early can save lives. We’re empowering frontline healthcare providers with the tools to do just that.
Join Our Community
Amyloidosis Africa is growing, and we welcome new members who want to be part of a pan-African effort to make amyloidosis visible, diagnosable, and treatable.
We advance cardiac amyloidosis care across Africa through collaboration, training, and research. Join us to change the future of heart health and empower local clinicians with knowledge and tools.
- Support cardiac care in Africa
- Give what you can to help
- Join our research network!
- Follow updates and news
