Clinical Research

Clinical Research for Amyloidosis in Africa

Amyloidosis Africa is committed to advancing Africa-led clinical research to improve understanding of amyloidosis within African populations. Although global recognition of amyloidosis is increasing, there remains a major lack of locally generated African data. Information on disease prevalence, clinical presentation, diagnostic pathways, and patient outcomes is limited or entirely absent in many countries. This evidence gap contributes to delayed diagnosis, misclassification of disease, and poor integration of amyloidosis into routine cardiovascular and neurological care. Africa-led research is essential to ensure diagnostic strategies reflect local realities and patient needs.

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Why This Matters in Africa

The absence of robust African data has serious consequences for patients and health systems. Without local evidence, amyloidosis is often overlooked in national health strategies, clinical guidelines, and research priorities. This leads to underdiagnosis, late presentation, and missed opportunities for timely intervention. African patients also remain underrepresented in global amyloidosis research, limiting the relevance of existing evidence and perpetuating inequities in knowledge generation.

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What We Do

Amyloidosis Africa supports and promotes clinical research initiatives focused on amyloidosis across the continent.

• Observational and real-world studies
• Patient registries and data platforms
• Collaborative multicenter research projects

Our work prioritizes ethical research practices, capacity building for African investigators, and equitable partnerships with local and international institutions. Through these efforts, we aim to ensure African clinicians and researchers contribute meaningfully to global amyloidosis knowledge while translating research findings into improved diagnosis, care, and policy impact.

OUR DOCUMENTS