Africa
experience
PEOPLE HELPED
TRAINED
Africa
experience
PEOPLE HELPED
TRAINED
OUR HISTORY
Why Amyloidosis Africa Was Born
Amyloidosis Africa is a pan-African initiative that brings together cardiologists from across the continent to address the growing but hidden burden of cardiac amyloidosis. Launched by CRK Clinical Research Key and the Kenya Cardiac Society (KCS), we aim to raise awareness, educate health professionals, and drive continent-wide research collaboration for early diagnosis and improved patient care.
- Serving 20+ African nations
- Focused on cardiac amyloidosis (hATTR-CM)
- Advancing genomic medicine
- Backed by African-led research
01
The Start
Amyloidosis Africa began as a clinical collaboration between cardiologists in Kenya, driven by the growing concern of underdiagnosed cardiac amyloidosis in African populations.
02
Growing Together
With support from national societies and research networks, we expanded across Africa, uniting doctors, researchers, and policymakers under one mission: equity in rare disease care.
03
Today
We now serve as a central platform for awareness campaigns, training programs, policy advocacy, and research, shining a light on a once-forgotten disease.
Our Commitment
Continental Engagement
We're working daily with clinicians and institutions across Africa to elevate the diagnosis and treatment of cardiac amyloidosis.
ABOUT US
Our Mission at Amyloidosis Africa
Amyloidosis Africa is dedicated to:
Raising awareness of ATTR amyloidosis across Africa
Promoting early and accurate diagnosis
Educating healthcare professionals through evidence-based programs
Supporting research, registries, and quality improvement initiatives
Advocating for equitable access to diagnostics and care
Healthcare professionals
Improve recognition of red-flag features and align practice with international standards from the European Society of Cardiology and American Heart Association .
Patients and families
Seek evaluation for persistent or unexplained symptoms and learn from trusted organizations such as the Amyloidosis Foundation .
Hospitals and institutions
Collaborate to develop referral pathways, registries, and diagnostic capacity across African health systems.
Researchers and policymakers
Support African-led data generation to ensure representation in global amyloidosis research.
Early recognition saves lives.
Rare does not mean invisible.
Voices From
Amyloidosis Africa
Dr. John Heshmat
We are building a continent-wide network of cardiologists committed to improving care for patients with amyloidosis. This collaboration is long overdue and necessary.
Prof. Leonard Ngunga
Cardiac amyloidosis is no longer a rare disease, it’s a rarely diagnosed one. Through Amyloidosis Africa, we are reshaping how Africa detects and manages this hidden epidemic.
Voices From Amyloidosis Africa
President, Kenya Cardiac Society
SUMMER PROMOTION
Check the adoptions
Amyloidosis Medical Education
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Pan-African Research Collaboration
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Amyloidosis Advocacy
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Amyloidosis Awareness
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Amyloidosis Clinical Research
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Quality Improvement & Implementation
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Patient Support
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Our Commitment Is Better Outcomes for Patients
We work across Africa to improve awareness, early diagnosis, research, and access to care for people affected by amyloidosis.
We advance cardiac amyloidosis care across Africa through collaboration, training, and research. Join us to change the future of heart health and empower local clinicians with knowledge and tools.
- Support cardiac care in Africa
- Give what you can to help
- Join our research network!
- Follow updates and news
