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Have questions, want to collaborate, or need resources on cardiac amyloidosis in Africa? We’d love to hear from you.Reach out and let’s move this mission forward, together.
Notre histoire
le meilleur soutien
Amyloidosis Africa a été fondée pour répondre à une crise sanitaire silencieuse : le sous-diagnostic largement répandu de l’amylose cardiaque à travers le continent. Issue d’une collaboration entre des cardiologues africains de premier plan et soutenue par des organisations telles que CRK Clinical Research Key, notre initiative est née d’une vision commune : garantir des soins équitables pour chaque cœur.
Des campagnes de sensibilisation à la recherche transfrontalière et à la formation des cliniciens, nous continuons à bâtir un réseau qui renforce les capacités des patients, des professionnels de santé et des décideurs, en apportant à l’Afrique le soutien dont elle a besoin, là où il est le plus nécessaire.
Formation des cliniciens
Soutien aux patients
Recherche
Collaboration continentale
Focus d’Amyloidosis Africa
Formation médicale
Nous proposons une formation médicale fondée sur des données probantes aux professionnels de santé à travers l’Afrique afin de renforcer le diagnostic précoce et d’améliorer les résultats pour les patients.
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NATIONS
Support
We provide clinicians and communities with educational tools, awareness resources, and ongoing training to better identify and understand cardiac amyloidosis.
Assistance
We connect patients, families, and healthcare providers with the knowledge and partnerships they need, offering guidance throughout the diagnostic and care journey.
Medical Care
We advocate for access to early testing, accurate diagnosis, and treatment pathways, bridging gaps in care through collaboration across Africa.
RESEARCH OPPORTUNITIES
Join Our Mission
Interested in partnering on studies, co-authoring papers, or joining our pan-African working groups? Fill out the form below and our team will get in touch.
Researchers
64
STUDIES
3
ORGANIZATIONS
6
Become a Member
Free Memmbership
$ 0 / annual
- Access to amyloidosis awareness resources
- Free educational materials and updates
- Invitations to selected webinars and events
- Participation in the Amyloidosis Africa community
- Networking with African clinicians and researchers
- Updates on research, advocacy, and initiatives
- Opportunity to join collaborative discussions
- Open to healthcare professionals, patients, and advocates
OUR IMPACT
CONTINENTAL SUPPORT
1
Cardiac amyloidosis remains under-recognized. We drive awareness at the national and local level.
2
Workshops and CME programs empower African doctors to detect and manage hATTR-CM effectively.
3
We support hospital-based research and surveys to map disease burden and care access.
4
Continental collaboration helps accelerate trials and produce Africa-led scientific data.
5
We equip patients and families with trusted resources for early care-seeking and diagnosis.
6
We collaborate with health ministries and societies to shape protocols for diagnosis and treatment.
OUR RECENT EVENTS
Join Us
HELP HEARTS
SPREAD AWARENESS
Cardiac amyloidosis is often misdiagnosed or missed entirely. Become a voice in your hospital, city, or community, educate others and help connect lives to life-saving care. Simple actions like sharing resources, organizing talks, or hosting CME sessions create real change.
JOIN OUR MISSION
AFRICAN-LED IMPACT
Dr. Constantin Nyamuzangura
For too long, patients across Africa have died undiagnosed. Amyloidosis Africa exists to change that through clinician education and regional collaboration.
Prof. Yasser Hosny
We are building a continent-wide network of cardiologists committed to improving care for patients with amyloidosis. This collaboration is long overdue, and absolutely necessary.
Dr. Anders Barasa
For too long, patients across Africa have died undiagnosed. Amyloidosis Africa exists to change that through clinician education and regional collaboration.
Dr. Mazou Ngou Temgoua
Recognizing the red flags of amyloidosis early can save lives. We’re empowering frontline healthcare providers with the tools to do just that.
Prof. Leonard Ngunga
Cardiac amyloidosis is no longer a rare disease, it’s a rarely diagnosed one. Through Amyloidosis Africa, we are reshaping how Africa detects and manages this hidden epidemic.
Prof. Yasser Hosny
We are building a continent-wide network of cardiologists committed to improving care for patients with amyloidosis. This collaboration is long overdue, and absolutely necessary.
Dr. Anders Barasa
For too long, patients across Africa have died undiagnosed. Amyloidosis Africa exists to change that through clinician education and regional collaboration.
Dr. George Otieno
Recognizing the red flags of amyloidosis early can save lives. We’re empowering frontline healthcare providers with the tools to do just that.
John Dawod
Amyloidosis in Africa is not rare; it is rarely recognized. By raising awareness and strengthening diagnosis, we can change outcomes for thousands of patients who are currently invisible.
CRK Clinical Research Key NGO
Prof. Ngunga
Cardiac amyloidosis remains an underappreciated cause of heart failure in Africa. Improving clinical suspicion and access to diagnosis is essential to advancing cardiovascular care on the continent.
Kenya Cardiac Societ President
Dr. Nyamuzangura
In many African countries, amyloidosis is diagnosed too late or not at all. Regional collaboration and education are key to closing this critical gap in cardiac care.
Burundi Cardiac Society President
Prof. Yasser Hosny
Amyloidosis is a global disease with a significant but overlooked presence in Africa. Early recognition and structured diagnostic pathways can dramatically improve patient survival and quality of life.
Professor of Cardiology, Egypt
Dr. Nyamuzangura
In many African countries, amyloidosis is diagnosed too late or not at all. Regional collaboration and education are key to closing this critical gap in cardiac care.
Burundi Cardiac Society President
Dr. Anders Barasa
Cardiac amyloidosis is an important but often overlooked cause of heart failure in Africa. Strengthening clinician awareness and diagnostic pathways will allow us to identify patients earlier and deliver more effective care.
Heart Failure Specialist, Kenya
OUR ANGELS
Our Main collaborators
Join Amyloidosis Africa today and be part of a continental movement transforming early diagnosis, research, and patient outcomes in cardiac amyloidosis.
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News & Insights
Stay informed with the latest articles, updates, and announcements from Amyloidosis Africa. Explore insights on research, awareness initiatives, medical education, and events advancing the diagnosis and care of amyloidosis across Africa
Our Contact
Address : Nairobi, Kenya
Email : contact@amyloidosisafrica.org
Timing : 09 am to 10 pm
We advance cardiac amyloidosis care across Africa through collaboration, training, and research. Join us to change the future of heart health and empower local clinicians with knowledge and tools.
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